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Epidermolysis Bullosa (16)
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Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research
http://www.debra-international.org/
Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
http://cristinascastle.homestead.com/
Includes articles, news, and information about this genetic disorder.
http://www.debracanada.org/
Features organization background, information about the disorder, fundraising and research details, and news.
http://www.debra.org.uk/
Offers information, news, newsletters, support, and resources.
http://www.debra.org/
Information, mailing list, pictures, and help for new parents.
http://www.ebinfoworld.com
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
http://www.ebkids.org/
A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition.
http://www.ebpatient.com
An online network for patients, family and friends affected by EB.
http://ebfriends.ning.com/
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
http://www.internationalebforum.org/
The author shares her son Jonathan's crusade and life with Epidermolysis Bullosa (EB), a rare genetic disorder.
http://www.ebzone.bravehost.com
Mailing list support group for parents, patients, and those interested in learning about disease.
http://health.groups.yahoo.com/group/EBworld/
Last Updated: 2007-01-02 16:35:19
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
