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Top: Health: Conditions_and_Diseases: Genetic_Disorders: Prader-Willi_Syndrome:

Prader-Willi Syndrome (16)

See Also:
This category in other languages:

French, Spanish

Sites:

http://www.tellingstories.nhs.uk/transcript.asp?id=52
» Caring for a Child with Prader-Willi Syndrome Open in a new browser window
   Gail describes her son's treatment by the NHS.
   http://www.tellingstories.nhs.uk/transcript.asp?id=52
http://www.fpwr.ca
» Foundation for Prader Willi Research Canada Open in a new browser window
   Charitable organization dedicated to eliminating Prader-Willi Syndrome through the advancement of research. Includes information, details of research projects and how members of the public can get involved.
   http://www.fpwr.ca
http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=pws
» GeneReviews: Prader-Willi Syndrome Open in a new browser window
   Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
   http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=pws
http://www.grettonhomes.co.uk/
» Gretton Homes Open in a new browser window
   Information about the organization that offers residential care in the UK for people with Prader-Willi syndrome.
   http://www.grettonhomes.co.uk/
http://www.lathamcenters.org/
» Latham Centers Open in a new browser window
   A residential facility, located on Cape Cod, USA, for the treatment of adults and children with Prader-Willi Syndrome. Includes details about diet, medical news, the programs, and consulting services.
   http://www.lathamcenters.org/
http://www.nichd.nih.gov/health/topics/Prader_Willi_Syndrome.cfm
» NICHD: Prader-Willi Syndrome Open in a new browser window
   Provides information on this condition, how it affects newborns and older children in different ways, and how it can be managed.
   http://www.nichd.nih.gov/health/topics/Prader_Willi_Syndrome.cfm
http://www.pwsnotes.org/
» PWS Notes Open in a new browser window
   Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
   http://www.pwsnotes.org/
http://www.patient.co.uk/doctor/Prader-Willi-Syndrome.htm
» Patient UK: Prader-Willi Syndrome Open in a new browser window
   Provides information for medical professionals on this complex genetic disorder.
   http://www.patient.co.uk/doctor/Prader-Willi-Syndrome.htm
http://www.prader-willi.org
» Prader-Willi Alliance of New York Open in a new browser window
   Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
   http://www.prader-willi.org
http://www.socialstyrelsen.se/english/rarediseases/prader-willisyndrome
» Prader-Willi Syndrome Open in a new browser window
   Information about Prader-Willi syndrome from the Rare Disease Database of the Swedish National Board of Health and Welfare.
   http://www.socialstyrelsen.se/english/rarediseases/prader-willisyndrome
http://www.pwsausa.org/
» Prader-Willi Syndrome Association (USA) Open in a new browser window
   Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult),
   http://www.pwsausa.org/
http://www.tellingstories.nhs.uk/transcript.asp?id=23
» Prader-Willi Syndrome: My Son’s Story Open in a new browser window
   Paula describes the birth of her son, the diagnosis of this condition at six weeks, the help she had from the consultant but the lack of support from other healthcare professionals.
   http://www.tellingstories.nhs.uk/transcript.asp?id=23
http://www.fpwr.org/
» The Foundation for Prader-Willi Research Open in a new browser window
   A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
   http://www.fpwr.org/
http://www.pwsausa.org/nj/
» The New Jersey Chapter of the Prader-Willi Syndrome Association Open in a new browser window
   Includes news, important dates, fund raising, maps and links.
   http://www.pwsausa.org/nj/
http://pwsa.co.uk/
» The Prader-Willi Syndrome Association (UK) Open in a new browser window
   Charitable organization providing support to people with PWS, their families and carers, and the professionals who work with them. Includes information and resources.
   http://pwsa.co.uk/
http://www.med.umich.edu/yourchild/topics/praders.htm
» University of Michigan Health System: Prader-Willi Syndrome Open in a new browser window
   Information about this syndrome in children and links to relevant articles and organizations providing advocacy and support.
   http://www.med.umich.edu/yourchild/topics/praders.htm

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Last Updated: 2010-07-15 02:10:31


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