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Proteus Syndrome (7)
Factsheet with an overview, signs, symptoms and management.
http://www.dermnetnz.org/systemic/proteus.html
Offers synonyms, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Proteus%20Syndrome
Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
http://www.proteus-syndrome.org/
Charitable organisation that supports and educates families and professionals about this condition and raises money for research.
http://www.proteus-syndrome.org.uk/
Factsheet on this extremely rare congenital disorder, its causes, features, diagnosis, treatment and when to seek medical help.
http://www.childrenfirst.nhs.uk/teens/health/conditions/p/proteus_syndrome.html
A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group.
http://www.cafamily.org.uk/Direct/p50.html
The BBC reports on a Lancashire woman's campaign to raise awareness of a condition which has left her with 11-stone legs.
http://news.bbc.co.uk/2/hi/uk_news/england/lancashire/6621331.stm
Last Updated: 2007-01-02 16:35:22
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
