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Sanfilippo Syndrome (7)
- Top/Health/Conditions and Diseases/Musculoskeletal Disorders/Connective Tissue
- Top/Health/Conditions and Diseases/Nutrition and Metabolism Disorders
- Top/Health/Conditions and Diseases/Rare Disorders
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
http://www.bensdream.org
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
http://www.claritystudio.com/helpachild/
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
http://www.curekirby.org/
Personal site about a child with this disorder. Provides details about the condition.
http://www.frankiepants.com
The parents of Jonah Weishaar, who has the rare genetic disease Sanfilippo Syndrome, are setting up the Foundation to Cure Sanfilippo to undertake research into the condition.
http://www.jonahsjustbegun.org
Information, including the causes, different forms, the inheritance and how the disorder progresses.
http://www.mpssociety.org/content/4039/MPS_III/
Canadian based charitable group founded by the parents of Elisa Linton.
http://www.alifeforelisa.org/
Last Updated: 2010-07-15 20:59:41
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
