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Trichothiodystrophy (10)
- Top/Health/Conditions and Diseases/Genetic Disorders/Xeroderma Pigmentosum
- Top/Health/Conditions and Diseases/Rare Disorders
A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.
http://www.vp-it.com.au/sammyjoe/
Personal history of a girl in France. [English/French]
http://monsite.wanadoo.fr/andrea2610/
Description and links.
http://www.infobiogen.fr/services/chromcancer/Kprones/TrichothioID10042.html
Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.
http://www.scalyskin.org/content.cfm?ContentID=105&ColumnID=14
Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.
http://www.keratin.com/ag/ag013.shtml
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.
http://www.jeansforgenes.com/
Trichothiodystrophy, the synonyms, a summary and a list of the major features.
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=omim&dopt=Detailed&tmpl=dispomimTemplate&list_uids=601675
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers.
http://www.orpha.net/data/patho/GB/uk-trichothiodystrophy.pdf
Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome.
http://health.groups.yahoo.com/group/Trichothiodystrophy/
For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.
http://health.groups.yahoo.com/group/TTD-support/
Last Updated: 2007-01-02 16:35:20
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
