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Post Polio Syndrome (23)

Editor's Picks:

» Gazette International Networking Institute (GINI) Editor's Pick

Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsl
http://www.post-polio.org

» Post-Polio Syndrome Central Editor's Pick

A listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
http://www.skally.net/ppsc/

Sites:

» British Polio Fellowship
Information about this British PPS support group. PPS questions and answers, publications, library, news and message board.
http://www.britishpolio.org.uk/

» Greater Boston Post-Polio Association
Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
http://gbppa.org

http://www.ott.zynet.co.uk/polio/lincolnshire/library/drhenry/helpfulhints.html

» Helpful Hints for Living with Post-Polio Syndrome
Article by Dr Henry, a physician and psychiatrist who has struggled with PPS himself.
http://www.ott.zynet.co.uk/polio/lincolnshire/library/drhenry/helpfulhints.html

» How to Prevent Further Disability In Polio Survivors - Silver 1999
PPS expert lists things to do and not to do.
http://www.skally.net/ppsc/silver2.html

http://www.ott.zynet.co.uk/polio/lincolnshire/

» Lincolnshire Post-Polio Network
An information service for polio survivors and medical professionals. Website offers an expanding online library of currently over one hundred full text articles on post-polio conditions, plus a bi-monthly newsletter and a categorised directory of healthc
http://www.ott.zynet.co.uk/polio/lincolnshire/

http://www.ninds.nih.gov/disorders/post_polio/post_polio.htm

» NINDS Post-Polio Syndrome Information Page
Post-polio syndrome information page compiled by the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/post_polio/post_polio.htm

» New Jersey Polio Network
Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.
http://njpolio.org/

» North Central Florida Post-Polio Support Group
Educates and informs polio survivors, healthcare professionals and family about polio, post-polio syndrome and care in polio vaccination.
http://www.postpoliosupport.com

» PPS Related Events, Seminars and Conferences
Calendar of non-commercial events concerning post-polio syndrome.
http://www.skally.net/ppsc/event.html

» PPS Survey
A survey for polio survivors with PPS
http://www.skally.net/pps_survey/

» Polio Survivors of the 21st Century
Features a not for profit polio survivor website and support forum.
http://www.survivorsofpolio.com

» Post Polio Awareness Support Society Minnesota
State wide group of Polio survivors organized to assist other survivors.
http://www.ppassmn.org

http://forums.delphiforums.com/bigcrusher/start

» Post Polio Syndrome Forum
A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share experiences pertaining to their PPS disability.
http://forums.delphiforums.com/bigcrusher/start

» Post Polio Syndrome Responses
A personal web page with links to Polio/PPS and other disability information.
http://www.ppsr.com/

http://www.post-polionetwork.org.au/index2.html

» Post-Polio Network of New South Wales Australia
PPS information, Australian Support Groups, Seminars, newsletters, articles and general Australian disability information.
http://www.post-polionetwork.org.au/index2.html

» Post-Polio Resource Group of SE Wisconsin
Formed by polio survivors to provide information and support to them and their families and to educate the medical community and the general public about post-polio syndrome.
http://www.pprg.org

» Post-Polio-Med Email List
Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
http://www.skally.net/ppmed/

» Rhode Island Infantile Paralysis Foundation
Provides assistance to former polio patients and individuals who experience post-polio syndrome. Find the services and types of equipment available and contact information. Located in Warwick, RI, USA.
http://www.riipf.org

» San Diego Polio Survivors
Support group. Profile, activities, membership, calendar, photographs, contact information.
http://home.mindspring.com/~polio/

» Saskatchewan Awareness of Post Polio Inc.
Information on polio, post-polio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.
http://poliosask.org/

» Why PPS Is So Hard To Understand-Bollenbach 1999
Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
http://www.skally.net/ppsc/und.html

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Last Updated: 2010-06-19 09:17:44

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