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Marfan Syndrome (22)
- Top/Health/Conditions and Diseases/Musculoskeletal Disorders/Connective Tissue/Ehlers-Danlos Syndrome
- Top/Health/Conditions and Diseases/Musculoskeletal Disorders/Connective Tissue/Hypermobility Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
http://www.americanheart.org/presenter.jhtml?identifier=4672
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/
Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=marfan
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/
Personal site by which describes the pathology and gives a bit of advice.
http://www.io.com/~cortese/marfan/
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com
Major resources listed as well as genetic information.
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700
Support group in New South Wales, Australia.
http://www.marfan.net.au
Online chapter from The Merck Manual of Medical Information.
http://www.merck.com/mmhe/sec23/ch279/ch279c.html
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html
Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie
Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment.
http://www.nhs.uk/conditions/Marfan-syndrome/
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/
From the National Institutes of Health.
http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://marfan.szm.sk
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
http://www.marfan.org.za
A diary of the disease events in the life of someone with this condition. Includes a list of links.
http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html
What the disease is and includes the impacts on daily life.
http://www.orthop.washington.edu/arthritis/types/marfan/01
Last Updated: 2010-06-12 19:26:43
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
