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Personal Pages (17)
Offering personal insight into raising a child with Dravet Syndrome, also known as Severe Myoclonic Epilepsy in Infancy. Offering Sarah's story, information on 4 Paws and the Keto diet.
http://www.adreamforsarah.com
Providing information about Dravet Syndrome from a parent perspective. Includes Alex's story, his angels, photographs and resources.
http://www.amiracleforalex.org
Bryant Lee Weasel's story about his struggle with Dravet Syndrome.
http://www.freewebs.com/bryanttel/
Cody has infantile spasms, a particularly nasty epilepsy starting in infancy. Videos, the photo gallery, treatments tried and support resources.
http://www.crazyforcody.com/
Anna is a student at UNC-G majoring in Speech Pathology. Here she explores the intricacies of this condition. Analysing an article titled "Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy."
http://dangerouslyrare.blogspot.com/
Author Sally Fletcher shares the complementary practices that have helped her remain seizure free for 18 years - without medication.
http://www.epilepsyhealth.com/
Personal life stories from those who experience epilepsy and seizures.
http://www.experienceproject.com/groups/Have-Epilepsy/21836
Two fifth grade students in NYC Public School 56 designed a site on epilepsy based on the personal experiences.
http://library.thinkquest.org/J001619/
The story and of a 6 year old girl with a catastrophic form of epilepsy and gobal regression, Dravet syndrome (SMEI). Offers support and resources for special needs kids.
http://www.HopeForSydney.com
The story of Broc Bartenhagen who was diagnosed with Infantile Spasms. A summary of tests performed, treatments and tried therapies.
http://www.infantilespasms.com
See how Jacob bet the odds by not meeting the poor prognosis expected with this usually debilitating condition.
http://www.netnomad.com/is.html
A sufferer from epilepsy all her life, Julie now lectures and writes on the subject. Samples of her work are included on the site.
http://www.livingwithepilepsy.org.uk
Mary describes her condition and the links she believes it has with the migraines from which she also suffers.
http://www.tellingstories.nhs.uk/transcript.asp?id=45
A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.
http://www.angelfire.com/amiga2/jenniz/
A parent of a child with Severe Myoclonic Epilepsy of Infancy shares her experiences with the condition. Offering activities for the kids, epilepsy events and a laymen's description of Dravet's.
http://shazzas.info
Explains the disease, its symptoms and treatments, as well as providing first aid and safety advice.
http://community.webtv.net/MzMinnieMouse/Understanding
Chronicles the journey of Karla Brown as she walks 9000 miles across America to raise awareness of epilepsy.
http://www.galixy.net/KB2002/KB.htm
Last Updated: 2008-08-08 23:04:04
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
