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Tuberous Sclerosis (14)

See Also:
This category in other languages:

French, Swedish

Sites:

http://www.cincinnatichildrens.org/Programs_Services/229/index.asp
» Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program Open in a new browser window
   Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
   http://www.cincinnatichildrens.org/Programs_Services/229/index.asp
http://www.tellingstories.nhs.uk/transcript.asp?id=5
» Karen’s Story: Family Life with Tuberous Sclerosis Open in a new browser window
   A mother’s account of some of the challenges associated with this autosomal dominant condition.
   http://www.tellingstories.nhs.uk/transcript.asp?id=5
http://www.kolten.homestead.com/Kolten.html
» Kolten's Tuberous Sclerosis Page Open in a new browser window
   Describes his seizures and surgery.
   http://www.kolten.homestead.com/Kolten.html
http://www.angelfire.com/la3/tsc/
» Matthew's Site for Tuberous Sclerosis Awareness Open in a new browser window
   Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
   http://www.angelfire.com/la3/tsc/
http://www.nlm.nih.gov/medlineplus/tuberoussclerosis.html
» MedlinePlus: Tuberous Sclerosis Open in a new browser window
   A list of synonyms, a summary and major features.
   http://www.nlm.nih.gov/medlineplus/tuberoussclerosis.html
http://www.nhs.uk/conditions/Tuberous-sclerosis/
» NHS Choices: Tuberous Sclerosis Open in a new browser window
   Provides information on this rare genetic condition. Includes details of symptoms, causes, diagnosis and treatment.
   http://www.nhs.uk/conditions/Tuberous-sclerosis/
http://www.tellingstories.nhs.uk/transcript.asp?id=11
» NHS: Telling Stories: Mark's Story Open in a new browser window
   Mark describes the complexities of his childrens' condition, the genetic information he has received and how family life is affected.
   http://www.tellingstories.nhs.uk/transcript.asp?id=11
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis
» NORD: Tuberous Sclerosis Open in a new browser window
   Offers alternative names, a general discussion and further resources.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis
http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp
» Pediatric Oncall- Tuberous Sclerosis Open in a new browser window
   Offers commonly asked questions about this disease.
   http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp
http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm
» Tuberous Sclerosis Open in a new browser window
   A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm
http://www.title14.com/ts/
» Tuberous Sclerosis - Lisa's Site Open in a new browser window
   An incurable genetic condition that causes tumors to grow in various places in the body.
   http://www.title14.com/ts/
http://www.tsalliance.org/
» Tuberous Sclerosis Alliance Open in a new browser window
   US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
   http://www.tsalliance.org/
http://www.tuberous-sclerosis.org/
» Tuberous Sclerosis Association Open in a new browser window
   UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
   http://www.tuberous-sclerosis.org/
http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm
» Tuberous Sclerosis Fact Sheet Open in a new browser window
   Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
   http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm

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Last Updated: 2010-07-15 19:34:48



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