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Genetic Disorders (16)
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National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
http://www.geneticalliance.org/
Non-profit patient advocacy organization. Support and information provided for those affected by rare chromosome disorder.
http://www.chromodisorder.org/
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make infor
http://www.cdlsusa.org
Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
http://home.comcast.net/~daryl59/10q/
Support and encouragement for people with congenital gender variations.
http://GendersInX.org
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
http://idic15.org/
An online support group for people dealing with Peter's Anomaly.
http://www.petersanomaly.org/
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
http://www.soft.org.uk
Provides literature, conferences, newsletter, chapter information, and international contacts.
http://www.trisomy.org/
Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
http://www.trisomy18.org
Lists Trisomy 18, Edwards syndrome memorial site, help making a website, and share a story.
http://www.t18moms.com/
Support and information for families of children with rare disorders.
http://www.rarechromo.org/
Offers support for individuals caring for others affected by Alpha Thalassemia Mental Retardation Syndrome.
http://health.groups.yahoo.com/group/atr-x/
Message board concerning Charcot-Marie-Tooth Disease.
http://health.groups.yahoo.com/group/CMT-Support/
Forum for the parents and families of children with Floating Harbor Syndrome.
http://groups.yahoo.com/group/floating_harbor/
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
http://groups.yahoo.com/group/MyotonicDystrophy2
Last Updated: 2010-06-16 06:50:43
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
