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Genetic Disorders (16)

Categories:

See Also:
Sites:

http://www.gig.org.uk
» Genetic Interest Group Open in a new browser window
   Information about this umbrella group of organisations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
   http://www.gig.org.uk
http://www.jsuk.btik.com/
» Joubert Syndrome in the UK Open in a new browser window
   Support group for families of children affected with Joubert Syndrome.
   http://www.jsuk.btik.com/
http://www.pxe.org.uk/
» PiXiE Open in a new browser window
   Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
   http://www.pxe.org.uk/
http://www.alkaptonuria.info/
» The Alkaptonuria Society Open in a new browser window
   Information about this genetic metabolic disorder for patients and professionals. Includes FAQ and a registration page for sufferers.
   http://www.alkaptonuria.info/
http://www.williams-syndrome.org.uk/
» The Williams Syndrome Foundation Open in a new browser window
   Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.
   http://www.williams-syndrome.org.uk/

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Last Updated: 2007-01-02 21:50:42



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