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Mucopolysaccharidoses (13)
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- Top/Health/Child Health/Special Needs
- Top/Health/Conditions and Diseases/Genetic Disorders
- Top/Health/Conditions and Diseases/Musculoskeletal Disorders/Connective Tissue
- Top/Health/Conditions and Diseases/Rare Disorders
Lists types, places to chat, and websites.
http://www.familyvillage.wisc.edu/lib_muco.htm
Aims to improve the awareness, diagnosis, and treatment of maroteaux-lamy syndrome, and to provide resources that can help improve the lives of those affected by this disease. Sections for patients and caregivers and for the healthcare professional.
http://www.maroteaux-lamy.com
Yahoo message group that offers support to those afflicted with mucopolysaccharide accumulation.
http://health.groups.yahoo.com/group/Morquio/
Describes the various types and looks particularly at behavioral and educational issues. Put together by the psychologist Michael B. Brown, Ph.D.
http://personal.ecu.edu/brownmi/muco.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/mucopolysaccharidoses/mucopolysaccharidoses.htm
Offers a list of synonyms, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Mucopolysaccharidoses
Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.
http://www.mpssociety.org/
Founded to provide information and support to affected individuals and their families.
http://www.mpssociety.ca/
A star studded fantasy hockey game and auction, allowing participants to play alongside some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.
http://www.mpscup.ca/
A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
http://www.mpssociety.co.uk/
Last Updated: 2010-07-15 20:43:44
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The content of this directory is based on the Open Directory and has been modified by AllMusicSearch.com editors
